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Treatment options: radiation without ADT?

Prostate Cancer | Last Active: Jul 28 9:17am | Replies (39)

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@groucho

I strongly suggest that before undergoing ADT as an adjunct to radiation therapy, a patient should watch an unvarnished October 2019 lecture (available online) by Dr. John Mulhall of Sloan Kettering regarding the uncertainty of testosterone recovery after ADT. His theme was: What they (treating ROs and urologists) don't tell you about what you're getting into. Unfortunately, I didn't see it until after I completed my 6 month course of Orgovyx. Fifteen months later, I'm still light-headed and have balance issues. My experience coincides with Dr. Mulhall's observation that ROs typically don't have a real discussion with their patients about the side effects and aftereffects of ADT. I thought I had thoroughly researched the risks and benefits, but I focused too much on the laundry list of specific side effects rather than the longer-term ramifications of testosterone suppression. In my opinion, my RO's cursory, at best, explanation of the risks and benefits was unconscionable particularly since I had emphasized at the outset that my treatment priority was quality of life rather than longevity

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Replies to "I strongly suggest that before undergoing ADT as an adjunct to radiation therapy, a patient should..."

yes I did not ever get a bottom line response from a radiologist , he seemed to do the same thing for everyone,,,,,and for a real disapointing they wanted me to include casodex . That is by far much worse and way outdated .I had no idea how bad those side effects were. Something out of a 30 years old bad dream.