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What pain reliever can I take with ITP and NASH.

Autoimmune Diseases | Last Active: Jul 15 2:32pm | Replies (5)

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@miffed

Yes there are pain clinics… I have used one.. a five hour drive back and forth… lidocaine shots in back and neck…Percocet. Then Spine clinic.. steroid injections in my facets in back… would only do four of them because I have osteoporosis… and same Percocet, I took only as needed. Then pain clinic in hospital another 5 hour drive.. for radio ablation of my nerves… doc said too painful and does not last as long as facet injections.. he suggested Botox shots in my back and neck… then I got ITP in April and everything went downhill fast…so I have not tried the Botox as I am still dealing with ITP and the prednisone… I am down to 40 mg now.. so probably will take awhile to get to zero prednisone… this is what is going on in my painful life…😢

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Replies to "Yes there are pain clinics… I have used one.. a five hour drive back and forth…..."

I can’t use it anymore bc I have breathing issues with it, but I initially had a lot of luck with lidocaine (patches & ointment). The CBD creams and tinctures seem to have great reviews for pain but I’ve not tried it. Of course it’s all got to come through your doctor. Alternative practices that have helped me are biofeedback, mindfulness meditation, acupuncture, & Jin Shin Jyutsu. Jon kabaat Zinn has some great pain management mindfullness books and started a pain clinic I think, at Mass General years ago that still persists. I like the audiobooks. It’s all about really checking in with myself about what kind of pain I’m having, and thinking in terms of layers for me. Starting super conservative with rest, baths, massage, sensory stimulation, stretching, ice, and heat, graduating to to topical biofreeze, used to try lidocain next, then Tylenol or a nsaids if for a short time, & ending very occasionally with a minute amount of hydrocodone averaging about once a month if I can’t bring the pain down with all the other methods. The problem with the pills is that they lose effectiveness so for me, it’s a balance between staying ahead of the pain cycle but not acclimating to the opiates. That means some days just have to be higher pain days where I focus on keeping my mind calm & breathing through more conservative interventions. Good luck. I’m so sorry you’re dealing with this.