← Return to Want to connect with other Cushing's disease Patients

Discussion
Comment receiving replies
@gretchenmpls

Hello @terryfriedman ,
I am so sorry you are having to go through this experience. I am with the Cushing's Support and Research Foundation and we have patient support all the time in a variety of ways. You can email myself or Leslie, call us on the phone, attend one of our monthly Zoom support sessions where you are welcome to share or just observe (your video does not need to be on) or depending on where you live there may be other patients we can help you get introduced. Here is the link to our website with the support call signup in the upper left corner http://www.csrf.net
You can also find our contact info on the website on the Contact Us page.

The type of Cushing's you have is exogenous and caused by the external source of corticosteroids. I'm not sure if your physician has talked to you about any medications at all, but either way, we are happy to help you!

Jump to this post


Replies to "Hello @terryfriedman , I am so sorry you are having to go through this experience. I..."

Thank you so very much. I’m at a loss. I appreciate your support so much. I would like very much to talk to someone zoom video would be great. I will get in touch very soon. Kindness regards
Terry Friedman

Leslie my endocrinologist doesn’t believe steroids can cause Cushing so I’m very lost all labs are normal which I’m grateful. But I still believe the uses of steroid causes these symptoms. I’m trying to get an appointment at Mayo Clinic for support. What medications are you familiar with for cushings caused by steroids to eliminate the pain and discomfort . Thank you so much look forward to hearing from you. Kindness regards