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Anyone else with peritoneal mesothelioma here?

Colorectal Cancer | Last Active: Jul 17 2:29pm | Replies (21)

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@colleenyoung

Hi @sherrygil, I'm tagging @misty13 @msfawn @myarmyherohusband to make sure they saw your posts and will join me in welcoming you to the group.

I'm glad that HIPEC surgery in 2019 and again in 2021 has stablized the peritoneal mesothelioma.

How are you doing now? What advice would you offer someone newly diagnosed with peritoneal mesothelioma?

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Replies to "Hi @sherrygil, I'm tagging @misty13 @msfawn @myarmyherohusband to make sure they saw your posts and will..."

Thank you so much for welcoming me! Im NED (no evidence of disease) as of right now thankfully. I would suggest to find a doctor who has expertise in meso research right away. I am a patient at Mayo, but I also go to M.D. Anderson in Houston. I do scans every 3 months between the Mayo and M.D. Anderson. I also am in palliative care. It can feel pretty lonely going through all of this, and was hoping to reach others who are going through this and can understand the constant fear. Please feel free to ask me any questions you might have!