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Looking for answers to help with gastroparesis

Digestive Health | Last Active: May 21 12:33pm | Replies (64)

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@kleffew

I have had mctd 7 years almost from the beginning I go from normal BMs to constipation to diarrhea does anyone else have this?

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I was finally diagnosed with gastroparesis in 2014 after so many hospital stays we should have had stocks in one. I was diagnosed with an atonic bowel back in 1980 and had been on so many laxatives that my GI doc tried to get something else. When I w ent to the ER they thought I was drug seeking. The pain with gastroparesis and constipation is 10+ and nausea 10+.I’m on a very strict diet but not much change. I’ve been on both OxyContin & Fentanyl and taken off both since I landed in the ER hallucinating. Then put on Methadone,Zofran( for nausea) and Gabapentine ( nerve pain ).I had a PICC line until 2023 when the site became infected. And now I have stage 3+ kidney disease and EPI ( which means my pancreas doesn’t function properly so now I’m on Creon which does nothing good for my gastroparesis. I was a nurse for 48 years.
If anyone has ANY suggestions or just want to connect I would like it. Even my husband of almost 58 years doesn’t always understand what’s happening !,

Yes I have had it for 8 years and deal with that all the time stool softeners help a little bit but it seems like the constipation is getting worse