Thanks so much. My one gripe about this surgery was no substantial after care nutrition advice. My surgeon prescribed Cholestyramine because of the constipation side effect. I'm not taking it because of other potential side effects and I want to work with the husks first. I've just been overdoing the fluids and under-doing the husks. Your advice is so helpful.
I experimented yesterday with increasing my p husk capsules and it did make a difference, at least in the short term. I'm going to follow your suggestion about fluid intake and have measured out my daily water allotment. I believe that I was nervous about hydration and small intestine blockage. But, I'm willing to give it a try.
I also eat all bran with blueberries in the a.m. and it helps.
Do you eat anything you want or do you limit spices or other foods? I get very confused about what to eat and read about SIBO and the FODMAP diet. It feels overwhelming. Any thoughts? Do you take any probiotics or digestive enzymes?
Since I have genetic recessive mutyh-associated polyposis (MAP), I need to get a sigmoidoscopy (even tho no sigmoid, but he can check the illieum for polyps). Also, get an upper endoscopy annually to check for polyps. I trust my gastro, but very nervous about doing the prep..since it will put system into a loose mode.
If you don't mind, I may post an update after a few weeks. There aren't many of us around with a TC.
Thanks again!
Thanks for your comment. Appreciated. And my best to you.
Tried probiotics but they didn't help.
Things I avoid:
Things with added sugar or high fructose corn syrup like non-diet sodas. Also tightly limit use of pancake syrup to minimal amounts.
Some frying fats are very troublesome - the difficulty is that it's "some". Most are OK in moderation, but I do have no-go places based on experience such as KFC. I'm fine with most fast food joints as long as I get senior meals and limit the deep fried stuff - example: I have no trouble with a burger and fries, but fired chicken strips and fries are too much. Ditto with all you can eat fish fries - limit the number of filets and go for a baked potato instead of fries. I does seem the heavier the oil (like peanut oil), the more it causes problems.
I'm checking into the FODMAP diet. It appears I do some of it already, but not all of it - I daily do some milk/dairy and fruits.
My docs do a sigmoidoscopy every 3 years, CT scans/blood work every 6 months now that it's been 41 months post surgery.