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Clear Cell Endometrial Carcinoma: Rare, aggressive, hard to treat

Gynecologic Cancers | Last Active: Nov 3, 2022 | Replies (52)
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@7429

I am looking for a discussion group that relates to my serous carcinoma. My initial cancer was endometrial in 2016. I had total hysterectomy and 8 negative lymph nodes. removed. Stage 1A. I had Pacil/Carbo for 6 treatments. I felt so relieved it was all over.... 2019 Same cancer showed back up on right acetabulum (hip). I had 15 days radiation started the same chemo drugs. On the 2nd treatment, I had a severe anaphylactic reaction to Carbo which I'm hearing is unusual. My new drug combo: Avastin, Taxotere,, and Herceptin. I'll be very honest. My first go round, I just wanted it out-tell me what to do. This time I'm trying to be more proactive but It's been hard. Radiation was a breeze to get thru, but afterwards was horrible. I've been sick and very fatigued the whole time. I've changed my diet to Mediterranean with some cheat days. Can anyone Relate?

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Replies to "I am looking for a discussion group that relates to my serous carcinoma. My initial cancer..."
Charlotte | @7429 | May 20, 2019

Correction: .....Carbo which I'm hearing is NOT unusual....

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glenda007 | @glenda007 | May 20, 2019

Hi Charlotte,
I am earlier in the process than you, having had surgery in November 2018, with serous endometrial cancer confirmed, and am about to complete treatments of Pacil/Carbo. It looks like I have had good results so far and won't need radiotherapy. (I am verygrateful given your experience. I have been applying a ketogenic diet for the past 3-4 months, being influenced by reading Kalamian and Grundy.
I have been very interested to hear about the drug combo you are now taking. I live in New Zealand and my public access to these drugs may be limited.
I have joined a Facebook page for Endometrial cancer, which you might find helpful.

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goldengirl2 | @goldengirl2 | Jun 10, 2019

I have uterine papaillary serous carcinoma..stage 3c .technically from surgery and chemo i don't have it any longer finished chemo 8 months ago ..have only had one follow up next one is in 2 weeks. Have you recovered from radiation yet? Isn’t herceptin a drug used if you are hormone positive?

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