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Anyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: Nov 5 10:09pm | Replies (1348)Comment receiving replies
Sorry there was some stuff I wanted to add. As you probably noted on reading peoples reactions to OP drugs the response seems to depend on the individual. Some people have problems and some don't. Sometimes the problems are short lived, sometimes not. It is so incredibly frustrating not to have someone i.e. your doc be able to say 'do this and all will be well'. It's so annoying and stressful. The best you can do is talk to your doc about options and do your own research about what they suggest.
On a side note my endocrinologist did suggest if Actonel didn't work out I could take a half dose of Reclast delivered over 60 minutes; not sure how that dosage/time helps but it was presented as an option. I believe there are some folks who have done that.
Again good luck!
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@ann707 I cannot do oral bisphosphonates due to GERD, and my doc was concerned about kidney disease, afib and general sensitivities with Reclast. He prescribed a 20% test dose. I hydrated the day before and day of, and he ordered an hour of IV hydration and the infusion of the low dose Reclast was also an hour. I took tylenol before, after, bedtime and as needed (frequently) for fever for 5 days. My tinnitus got worse and after a week or two I had pins and needles in my hands and feet. Now, at one month, I am fine- no side effects.
I will do 1 - 1.5 mg in September ( 3 month mark) then go up to 2 - 3 mg in Dec. I wish I could take Actonel but hoping I can continue this way and maybe mimic the shorter action of orals. We'll see! (This is follow up to Tymlos for 2 years and Evenity for 4 months.)