So sorry to hear how long you've been dealing with this. I had only been dealing with 3 months of mysterious symptoms and being treated by some docs as though I were imagining things or being a hypochondriac. My own PCP told me to "go home and relax"--being unable to drive from dizziness had already kept me home for 6 weeks!

I was fortunate in that a friend spoke to another friend who had experience with Dr. Jordan Vaughn and PA Katie Taylor at MedHelp here in Birmingham. They told me it would take months to get into see Dr. Vaughn, so I should try to make an appt with Katie. When I called I was told it would take 2 months, I started crying and had to give the phone to my husband. He was put on hold forever but when the lady came back, she had an opening in 2 weeks. Maybe crying helps? 😉

So this was just 2 weeks ago for me. I wasn't impressed by the place: it was by all appearances an urgent care center. We had to wait hours before being called, and my husband and I were getting more and more annoyed by the minute. But by the end of my time with Katie (4 hours total), we had done a 180. The man who did a breathing test on me told me that people come from all over the world for this. He was a little surprised that I was local.

Anyway, the list of my meds says that these are personalized to me. My main problems were dizziness, headache, fatigue, some chest soreness (I don't have asthma but it's how I imagined asthma might feel--trouble breathing). And I almost didn't bring it up because I thought it was completely separate, but I told her that I had started having allergies like I've never had in my life. Felt allergic to my home, the cats, the cat litter, etc. Nose running all the time. I had just finished a round of a steroid nasal spray that dried me up but I could tell it hadn't taken care of the root of the problem. Still felt allergic.

Without missing a beat, Katie told me that many long COVID sufferers also complain of sudden onset of allergies. She spoke a lot about histamines, but I'm afraid I understood very little.
Honestly, I've never had a doctor or PA speak so much science to me. I'm pretty good at understanding medical terminology, but I was completely lost and really couldn't understand of what she was telling us. My husband told me later that from what he could tell, the prescribed medicines would be working to thin my blood (from microclots causing "sludge"), get oxygenated blood to my brain to clear the brain fog and clear my lungs.

Chest x-ray did show I had inflamed lungs. They took tons of blood, and we had to wait for a few results before we could see Katie: she wanted the cardiac results. Those results did show the presence of clots (the D-Dimer, I think). I'll see her again in 2 weeks to discuss the rest of the results that appear to have been sent to a lab in Huntsville.

My chest doesn't seem better right now, but the headache and dizziness are gone. I think my brain fog is a little better. My sinuses are definitely better. One thing I did not tell her about because, again, I thought it had to be a separate issue, but I haven't been able to get used to my new glasses. I have read that long Covid can affect your eyesight, but I had hoped that would only be in extreme cases. I have a very difficult/expensive prescription: my new glasses cost about $750, and I've had to have them redone but I still don't feel comfortable with them. I am praying it's the fault of the lab and not that my eyesight has changed.

Anyway, sorry to be so long-winded, but now I will give you the list of meds. I just wanted to tell you what my symptoms are so that you won't assume these meds would be exactly the same for you.

Coagulation and Fibrinolysis (I still haven't looked up fibrinolysis. I have a history of DVT, so coagulation I understand):

1. Baby aspirin twice a day
2. Eliquis 5mg tablet split to take twice a day
3. Pentoxifylline 400mg twice a day
4. Nattokinase 100mg twice a day (empty stomach)

Mast Cell Activation and Stomach Protection:
1. Quercetin 500mg twice a day
2. Famotidine 40mg twice a day
3. Ketotifen 1mg twice a day
4. NAC, 1 tablet twice a day
5. Ivermectin for 14 days (with food)

The Ketotifen and Ivermectin were compounded and the most expensive, but I won't need to refill them. Interestingly, ketotifen is the same as Pataday eye drops--making it an antihistamine.

I am pretty certain that if you look up each one of these items with "______ and long Covid," you'll find scientific articles giving the reasons for being prescribed.

There are tips for dealing with worsening symptoms which they said to expect for 2-10 days after starting, but I didn't feel much worse at all. I didn't feel great, but I was expecting to be bedridden which I wasn't.

Hope this helps! I also hope you don't have to wait 5 months. My only guess is that perhaps Dr. Vaughn is the only one who can treat people out of state. I've had difficulties trying to get appts with doctors in GA or TN--not all are licensed to treat an out-of-state resident.