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Clear Cell Endometrial Carcinoma: Rare, aggressive, hard to treat
Gynecologic Cancers | Last Active: Nov 3, 2022 | Replies (52)Comment receiving replies
Dear @kate123, I hope you are recovering well from the surgery.
Did you have a Wertheim procedure?
Did they remove a lot of lymph nodes?
Did the doctor propose any adjuvant therapy?
I had my uterine clear cell carcinoma diagnosis also beginning of January and had surgery a few weeks later.
It was a Wertheim plus removal of 55 plus lymph nodes.
The recovery takes longer than I thought but I listen to my body and rest whenever I need to.
Ever since I have, alas to no avail, been trying to find other women who have uterine clear cell carcinoma but we are indeed a very rare breed 🙂
And also because it is such a rare one, it is not the kind of cancer that attracts big pharma to invest in research into this specific one.
I so understand your fear about not knowing where it might resurface.
The surgeon told me as well that they caught it early on so I do think that is a major positive factor for both you and me.
Can I ask you how old you are and if you were already premenopausal or menopausal before the surgery?
All the best, Kate!
Replies to "Dear @kate123, I hope you are recovering well from the surgery. Did you have a Wertheim..."
hello - I was diagnosed with Clear cell EC III in June of 2022. I've had the radical hysterectomy as well as lymphonodectomy because the lymph nodes were affected in both the pelvic and para aortic region. The doctors wanted me to have both chemo and radiation, but after an anaphylactic reaction to Taxol, I have decided to just do radiation. How did you respond to your treatments.
thank you -
Hello- I was diagnosed with ECIII clear cell carcinoma in June of 22’ with surgery in July of 22’. I just got finished with radiation last week and go back for a check up in 6 weeks. I really liked my radiation oncologist and her whole team and the support they gave me.. I was advised to get chemo first and then have radiation, but I had a horrible reaction to Taxol and decided to forgo chemo and just do radiation. Sorry for being long winded, but has anyone with a similar diagnosis just done radiation without chemo? Praying I made the right choice but I just personally felt I would be a bad chemo candidate. Thx
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Oh, I am so sorry, I just noticed that your post dates from 2016. 😐