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Anyone taken Evenity (romosozumab) for Osteoporosis?
Osteoporosis & Bone Health | Last Active: Nov 5 10:09pm | Replies (1348)Comment receiving replies
Try switching to once a week actonel. The dosage is lower and it has a shorter half life than Fosamax so it can clear your system faster.
I stopped Evenity after 9 months because of increasing pain in my hands and wrists. The follow up with Reclast, which I had taken before without any lasting problems, the pain in my right hand/thumb joint intensified and within 6 weeks or so traveled to my left hand. Over a year the pain has decreased and I am able to pinch things and open cans again. I still have discomfort if I overdo but it is no where near what it was.
Because of my reaction to Reclast I did do the change to Actonel and I haven't had any increased pain in my hands that I can say is because of the drug since then. At least for now.
If I recall there was someone else on this forum who went to Fosamax after Evenity had problems and switched to Actonel. If she reads this maybe she will chime in as to her experience.
Good luck
Replies to "Try switching to once a week actonel. The dosage is lower and it has a shorter..."
I decided to give the Fosamax one more week and hope that the adverse effects calm down. I also scheduled an appointment at the Cleveland Clinic for a second opinion because there are some things I don't agree with my doctor about, testing, meds, etc. I have to wait till September but in the long run that's not too bad. That's another reason I decided to hang in there with the Fosamax for now, it would be a long time without medication.
Thanks for your info about Actonel.
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Sorry there was some stuff I wanted to add. As you probably noted on reading peoples reactions to OP drugs the response seems to depend on the individual. Some people have problems and some don't. Sometimes the problems are short lived, sometimes not. It is so incredibly frustrating not to have someone i.e. your doc be able to say 'do this and all will be well'. It's so annoying and stressful. The best you can do is talk to your doc about options and do your own research about what they suggest.
On a side note my endocrinologist did suggest if Actonel didn't work out I could take a half dose of Reclast delivered over 60 minutes; not sure how that dosage/time helps but it was presented as an option. I believe there are some folks who have done that.
Again good luck!