← Return to New treatment Pluvicto (radioligand therapy) for prostate cancer

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@stevecando54

At the start, I had no symptoms, was getting terrible pain in my leg. At diagnosis I had psa 932, stage 4 Metastatic, top to bottom. Started chemo and firmagon, after a few months the pain stopped. Now 16 months in, I deal with the fatigue, which is no where near the level of having pain. Never gave thought to getting prostate cancer at 68 but here I am. I understand quality of life, fatigue is one thing, pain is the worse. I'm hoping they have a treatment for you, maybe no cure right now but as they told me, they can control it. Please keep coming back to this site, so many that you can relate to who are very supportive. I've been saying a prayer for you since first reading your post. Best to all.

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Replies to "At the start, I had no symptoms, was getting terrible pain in my leg. At diagnosis..."

That's a tough ride, having so many metastases. It sounds like you've had good treatment. Did you have radiation to the prostate as well, to deal with the source of the cancer, or did you and your care team decide that would be too much on top of the chemo and ADT? Have you asked about adding an ARSI like Erleada to the Firmagon to lengthen its effectiveness?

(I think we might have discussed this before, so apologies for any repetition.)