← Return to Optional double mastectomy over single. What helped you to decide?

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@californiazebra

@colely
Because my risk of ovarian cancer was so high I took the surgeon’s recommendation and had my tubes and ovaries removed at the same time as I had the mastectomies. I was 54 and done with them anyway.

I don’t understand why they won’t test you for BRCA when you have a family history of BC. My first cousin had BC but did not have the BRCA mutation so you may not have it. I was tested because my aunt had breast cancer however I later found out she made that up decades ago (long story). My surgeon just laughed when I told her that and said it’s lucky she lied or I wouldn’t have been tested. No other BC in my family but lots of other cancers.

My son needed to be tested at 35 because of my BRCA mutation. My surgeon advised us to go thru color.com so you can get the testing there for about $200 not covered by insurance. The test includes lots of other genetic tests as well. I actually tested again on color.com with my son for a lot of other cancer mutations, cardiac and enzymes needed to properly metabolize meds since I have so many issues. I found out I also have the CHEK2 mutation for BC, colon cancer and others. My son also has BRCA2 and CHEK2. The tests gave us lots of other info too.

The testing may put your mind at ease. You just have to spit in a tube and mail it in. A generic counselor will review results with you and you’ll receive an in-depth report. I hope that helps.

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Replies to "@colely Because my risk of ovarian cancer was so high I took the surgeon’s recommendation and..."

Thank you for your genetic test information. I will get the color.com test and see what it says. Yes, my Paternal grandmother and some of her sisters, had breast cancer. The Oncology doctor asked me if my father had breast cancer, and I told them he died in his 50s from heart disease, so who knows what would have happened. But that was enough for me to be denied testing.