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Repeat Collagenous Colitis "flare"

Digestive Health | Last Active: Aug 16 10:17am | Replies (27)
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@fdixon63

Thanks for the response pb50. I'm going to contact my GI group tomorrow and see what they have to say. I'm concerned because I can't keep my weight at a healthy level. Am afraid to eat anything. Also, it affects daily living--hard to go anywhere because of potential embarrassing "problem." I had even asked my doc earlier this year if it's possible to stay on Budesonide but she said that is not an option.

I would like to know what your GI doc has to say when you go for your next visit. Hope you get some good answers.

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Replies to "Thanks for the response pb50. I'm going to contact my GI group tomorrow and see what..."
pb50 | @pb50 | Jul 15 6:55am

One more thing -if I take three liquid filled capsules of Pepto Bismol three times a day, I can make it well enough for a couple of hours after taking a dose to go to grocery store or doctor appointment and sometimes Church.

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debhammel | @debhammel | Jul 16 7:27am

You may want to consider a second opinion on the long-term use of Budsonide. It is considered safe for long-term use in controlling Collagenous Colitis. My GI doc has many patients taking low doses of Budesonide to manage this and has told me many times that this is a common treatment.

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