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Repeat Collagenous Colitis "flare"

Digestive Health | Last Active: Aug 16 10:17am | Replies (27)

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@pb50

Im having same. I was diagnosed Sept 2022 and was on a 12 week course of Budesonid that was entirely successful. I quit taking PPIs and NSAIDs
No issues until end of April when i was having cataract surgery and taking nsaid eye drops every 4 hours for four weeks for each eye. And i began to have diarrhea again. It has been progressively worse - complete with incontinence and nocturnal episodes.
I did get budesonide again but it hasn't worked this time. I am tapering off and will quit this week. I see my GI doc the end of this month and we are going to explore what else it could be. Very depressed about it all.

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Replies to "Im having same. I was diagnosed Sept 2022 and was on a 12 week course of..."

Thanks for the response pb50. I'm going to contact my GI group tomorrow and see what they have to say. I'm concerned because I can't keep my weight at a healthy level. Am afraid to eat anything. Also, it affects daily living--hard to go anywhere because of potential embarrassing "problem." I had even asked my doc earlier this year if it's possible to stay on Budesonide but she said that is not an option.

I would like to know what your GI doc has to say when you go for your next visit. Hope you get some good answers.