Meningioma: Anyone else? I'm frightened

Im 49 years old and I found out last September that I have an inoperable menagona wrapped completely around the left optical nerve. I began having symptoms of not being able to move My eye amoung many scary episodes caused seizers, passed out woke In hospital. But this diagnosis was not what I thought was happening. I've gotten a second opinion. If they attempt to remove it's encased or something around a vein it's so complicated and scary. I had radiation treatment in December in attempts to shrink the mass. My symptoms are getting worse and It frightens me because my thought process or the way I feel or even having to reach down to touch my left leg to make sure it is still there. I've ignored these symptoms as I began having the leg sensations weird like I couldn't tell where my left leg was. I was 29 when those symptoms began. So yes it was very large when it wad found. I got the call within hours from the carti cancer mri and neurologist. Although it is not cancer I also still have an oncologist doctor and a nurosurgeon and have so far had had one treatment of radiation and will have to continue for the rest of my life to keep it small or I pray it does. But I want it removed but I'm told it would be detrimental from possible death, paralysis blah blah blah kind of want to give up because it gets worse or the symptoms feel like they do. And my youngest child is 14 years old.

Im 49 years old and I found out last September that I have an inoperable menagona wrapped completely around the left optical nerve. I began having symptoms of not being able to move My eye amoung many scary episodes caused seizers, passed out woke In hospital. But this diagnosis was not what I thought was happening. I've gotten a second opinion. If they attempt to remove it's encased or something around a vein it's so complicated and scary. I had radiation treatment in December in attempts to shrink the mass. My symptoms are getting worse and It frightens me because my thought process or the way I feel or even having to reach down to touch my left leg to make sure it is still there. I've ignored these symptoms as I began having the leg sensations weird like I couldn't tell where my left leg was. I was 29 when those symptoms began. So yes it was very large when it wad found. I got the call within hours from the carti cancer mri and neurologist. Although it is not cancer I also still have an oncologist doctor and a nurosurgeon and have so far had had one treatment of radiation and will have to continue for the rest of my life to keep it small or I pray it does. But I want it removed but I'm told it would be detrimental from possible death, paralysis blah blah blah kind of want to give up because it gets worse or the symptoms feel like they do. And my youngest child is 14 years old.

Im 49 years old and I found out last September that I have an inoperable menagona wrapped completely around the left optical nerve. I began having symptoms of not being able to move My eye amoung many scary episodes caused seizers, passed out woke In hospital. But this diagnosis was not what I thought was happening. I've gotten a second opinion. If they attempt to remove it's encased or something around a vein it's so complicated and scary. I had radiation treatment in December in attempts to shrink the mass. My symptoms are getting worse and It frightens me because my thought process or the way I feel or even having to reach down to touch my left leg to make sure it is still there. I've ignored these symptoms as I began having the leg sensations weird like I couldn't tell where my left leg was. I was 29 when those symptoms began. So yes it was very large when it wad found. I got the call within hours from the carti cancer mri and neurologist. Although it is not cancer I also still have an oncologist doctor and a nurosurgeon and have so far had had one treatment of radiation and will have to continue for the rest of my life to keep it small or I pray it does. But I want it removed but I'm told it would be detrimental from possible death, paralysis blah blah blah kind of want to give up because it gets worse or the symptoms feel like they do. And my youngest child is 14 years old.

I have had a meningioma now for 6 years. Or have known about it now for that long. Unfortunately it has not begun to grow abcs I’m getting ready for a craniotomy. Mine is a left sphenoid wing meningioma. And apparently all are different. My optic nerve and carotid are very close. So I too am a little nervous.

If I don’t get the surgery there is a chance that I’ll lose my vision. There will also be some disfigurement, as that is what happens with optic nerve involvement.

So, I’m preparing. It will likely be one month from now. I’ll be out off with for a while. I do have a good surgeon. I’m 71, and I’m in pretty good shape for my age. So. I’ve got that going for me. But I’m a bit nervous. I will keep you posted. And I’ll keep you in my prayers.

aZ

AZ, I had a meningioma near my left optic nerve and around my carotid artery in February. The surgeon said he got it out. Things have been going well, but fatigue takes awhile to recover. Hope all goes well.

Where did you have your surgery?

I have had a meningioma now for 6 years. Or have known about it now for that long. Unfortunately it has not begun to grow abcs I’m getting ready for a craniotomy. Mine is a left sphenoid wing meningioma. And apparently all are different. My optic nerve and carotid are very close. So I too am a little nervous.

If I don’t get the surgery there is a chance that I’ll lose my vision. There will also be some disfigurement, as that is what happens with optic nerve involvement.

So, I’m preparing. It will likely be one month from now. I’ll be out off with for a while. I do have a good surgeon. I’m 71, and I’m in pretty good shape for my age. So. I’ve got that going for me. But I’m a bit nervous. I will keep you posted. And I’ll keep you in my prayers.

aZ