Connect
← Return to Want to connect with other Cushing's disease Patients
Discussion
Want to connect with other Cushing's disease Patients
Diabetes & Endocrine System | Last Active: Jul 16 1:22pm | Replies (29)Comment receiving replies
Hi I would like very much to correct with people struggling with Cushings disease. In pain puffy face gained 22 pounds in waistline in 24 days. Humpback bruising on arms no energy getting B12 shots for energy. My cushings disease was caused by steroid use for cervical neck and sciatica due to car accident. Deep sadness with tears almost daily. Need some support thankyou kindness regards Terry Friedman
Replies to "Hi I would like very much to correct with people struggling with Cushings disease. In pain..."
Connect
Hello @terryfriedman ,
I am so sorry you are having to go through this experience. I am with the Cushing's Support and Research Foundation and we have patient support all the time in a variety of ways. You can email myself or Leslie, call us on the phone, attend one of our monthly Zoom support sessions where you are welcome to share or just observe (your video does not need to be on) or depending on where you live there may be other patients we can help you get introduced. Here is the link to our website with the support call signup in the upper left corner http://www.csrf.net
You can also find our contact info on the website on the Contact Us page.
The type of Cushing's you have is exogenous and caused by the external source of corticosteroids. I'm not sure if your physician has talked to you about any medications at all, but either way, we are happy to help you!