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@dloos

The adenoma was discovered accidentally during a CT scan to check out my pancreas. My mother died from pancreatic cancer and I’d had some suspicious symptoms. My pancreas appeared fine but I was concerned at the mention of the adrenal adenoma. No doctor has ever been concerned about that. Whenever I mention it, it is dismissed, as has happened with this last CT scan.

I know I seem like an hypochondriac now, but until the last couple years (after having Covid) I rarely went to the doctor.
I have had good and bad experience with many, many doctors in the last two years. Like you, some have brought me to tears, and I never return.

Yes, a referral definitely gets you in to see a specialist faster. But
I find now that even with a referral it’s up to me to make contact and set up the appointment. In years past the doctor’s nurse would handle that appointment while you were still in the office. Now, most everything is left to the patient. I have my husband’s help or I would have given up this fight a long time ago.

I hope you get the help you need.

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Replies to "The adenoma was discovered accidentally during a CT scan to check out my pancreas. My mother..."

I wouldn’t have made it this far either, but my fiancé, who is European is a Godsend. We have been together for six years, and he is very healthy for a 70 year old, and I was always very heathy, even though I was born with a congenital heart defect. I grew up on a farm, and did my share to help out. My defect is one of the few that will allow a pregnancy. In fact, during my former marriage I had three sons, but my last son was supposed to be a cesarean section, and there was no anesthesiologist available in the Navy hospital in the Philippine Islands, so the nurses said, “we’ll have to wing it.” That’s never something a woman wants to hear before she gives birth. I ended up suffering a partial uterine prolapse, and seven months later I ended having my womb removed. Those Navy Docs screwed things up so bad; I would later learn stateside from my GYN that my estrogen levels were so low, he said, “ they most likely crossclamped the arteries feeding your ovaries, and they were not functioning normally. I don’t hate all doctors, just some. I’m seriously considering going out of the country to get this Pheo taken care of. But at 71 that might be a daunting task.

BTW, I don’t think being concerned about your health makes you a hypochondriac. If my mother had died from pancreatic cancer, any tumors, including adenomas would have given me cause for concern. My mother had type 1 DM, and she developed chronic renal insufficiency not too long after she was dxed (58), but she made it to 93.5. But before she passed she ended up in the hospital, and they had her undergo an MRI only to tell her they believed she had a pancreatic neuroendocrine tumor. When she heard that she told them she wanted to go home on hospice, and that’s exactly what she did. She had a full life, I only wish my father hadn’t died 30 years before her.