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@katiedid

You said you had a cat scan nine years ago which demonstrated an adenoma; did your primary refer you or did you go see a specialist on your own? Because, it has always been my experience that my primary would recognize that I had a medical issue, and thus would make arrangements with a specialist, and they (specialist) would see me quicker than if I made the appointment myself. One time I said to my then primary, “how did you get me an appointment with that specialist so soon?” He simply replied, “it’s called professional courtesy.” I’m about to fire the cardiologist that I just began seeing. I have had three visits at his office, and each visit has caused me stress and made me depressed. When a physician makes anyone feel that bad, they need to “go.” At the second visit he brought me to tears, I should never have gone for the third visit. On 7/11 he said, “ your scans didn’t show anything, so you don’t have a pheochromocytoma.” I told him that I believed otherwise, and that, just because an mri fails to show it, doesn’t mean it’s not there. I’ve read journal articles in PubMed that clearly state MIBG123 is reserved for those patients who’ve had other imaging studies (cat scans/mris) that failed to locate these pheos. This cardiologist is in a group with other cardiologists, and their boss is Robert Wood Johnson Hospital. I intend to reach out to them on Monday, because they need to be aware that they have in their employ a doctor who causes patients harm, physical or mental, neither one is good for the patient.

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Replies to "You said you had a cat scan nine years ago which demonstrated an adenoma; did your..."

The adenoma was discovered accidentally during a CT scan to check out my pancreas. My mother died from pancreatic cancer and I’d had some suspicious symptoms. My pancreas appeared fine but I was concerned at the mention of the adrenal adenoma. No doctor has ever been concerned about that. Whenever I mention it, it is dismissed, as has happened with this last CT scan.

I know I seem like an hypochondriac now, but until the last couple years (after having Covid) I rarely went to the doctor.
I have had good and bad experience with many, many doctors in the last two years. Like you, some have brought me to tears, and I never return.

Yes, a referral definitely gets you in to see a specialist faster. But
I find now that even with a referral it’s up to me to make contact and set up the appointment. In years past the doctor’s nurse would handle that appointment while you were still in the office. Now, most everything is left to the patient. I have my husband’s help or I would have given up this fight a long time ago.

I hope you get the help you need.