Question on DCIS outcome

Posted by prc73 @prc73, May 8 3:53pm

Hi there , anyone who was diagnosed with DCIS where it ended up being nothing or it was actually more extensive . Just curious . I have DCIS myself .

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@gillbell84

Yes core biopsy after mammogram and ultrasound - DCIS identified an due to breast density my surgeon said best tongsve MRI to ensure no surprises - surprise was it wa much larger and hence change from lympectomy to mastectomy - biopsy is only a tiny slice so they never know until after surgery what's in there. But thankfully mine came back as all DCIS. It's a journey from biopsy results to post surgery results it was 7 weeks.

Jump to this post

I'm at 10 weeks and don't have a surgery date due to Mri finding another lesion.Now they want another biopsy.I'm probably at 12 to 13 weeks when I finally get surgery.Very frustrating. I'm 76,DCIS hormone pos.2 lumps so far one lymph node.Hope they don't find anything else.Started anastazole today.

REPLY
@tonysmom

I'm at 10 weeks and don't have a surgery date due to Mri finding another lesion.Now they want another biopsy.I'm probably at 12 to 13 weeks when I finally get surgery.Very frustrating. I'm 76,DCIS hormone pos.2 lumps so far one lymph node.Hope they don't find anything else.Started anastazole today.

Jump to this post

Anastrozole is very effective in shrinking ER+ tumor. My PA said during the covid they prescribed Anastrozole because of long wait for surgery. She said in some people (I assume ER+) the tumors shrank substantially.

REPLY

Hello Everyone!

I was diagnosed with breast cancer last year. I am so grateful for the knowledgeable doctors and nurses who treated me. I was diagnosed with DCIS and had a lumpectomy. It was restful to have professional, respectful, and kind caregivers. They found that it was invasive and seemed a bit surprised. So back to surgery, I went. I am very fortunate that they did not find anything in the lymph glands. I had 5 sessions of high-level (whatever that may mean . . .) and I was grateful for not having to drive a 2-hour round trip 5 days a week to receive radiation. My last diagnostic mammogram was clear. I am in my second year of taking Anastrozole and the hot flashes are very hot and long-lasting. My medical oncologist mentioned that there was a new drug for hot flashes but it is contradicted in my case. The only way I can function is by keeping the ambient temperature at 68 degrees and sitting in front of a fan. I am wondering if anyone has suggestions on how to deal with the hot flashes. Towards the end of most hot flashes, I seem to develop a headache which can make me hypersensitive to light, and lightheadedness. Anyone who can share how they coped or are coping with this side effect of Anastrozole will be in my debt. 🙂 Linda

REPLY
@lindaisling

Hello Everyone!

I was diagnosed with breast cancer last year. I am so grateful for the knowledgeable doctors and nurses who treated me. I was diagnosed with DCIS and had a lumpectomy. It was restful to have professional, respectful, and kind caregivers. They found that it was invasive and seemed a bit surprised. So back to surgery, I went. I am very fortunate that they did not find anything in the lymph glands. I had 5 sessions of high-level (whatever that may mean . . .) and I was grateful for not having to drive a 2-hour round trip 5 days a week to receive radiation. My last diagnostic mammogram was clear. I am in my second year of taking Anastrozole and the hot flashes are very hot and long-lasting. My medical oncologist mentioned that there was a new drug for hot flashes but it is contradicted in my case. The only way I can function is by keeping the ambient temperature at 68 degrees and sitting in front of a fan. I am wondering if anyone has suggestions on how to deal with the hot flashes. Towards the end of most hot flashes, I seem to develop a headache which can make me hypersensitive to light, and lightheadedness. Anyone who can share how they coped or are coping with this side effect of Anastrozole will be in my debt. 🙂 Linda

Jump to this post

I use portable fans, wear linen cool clothes and use an ice neck wrap. Amazon sells these bandana looking neck wraps that can be wet then frozen. I keep several in the freezer and swap them out.

I am also very lucky to air conditioned car seats which are invaluable!

I too need the room temperature around 67. I also bought a "cooling" blanket also from Amazon.

CVS sells a cooling gel and cooling neck patches. They come in handy when you aren't near a freezer.

I had to take off the mattress protector I had on as it was too hot. I keep a beach towel on top of the mattress pad. I can then wash the towel and sheet and not the mattress pad as much.

This summer has been hot! I walk the dog in the a.m. and spend the rest of the time in air-conditioning.

I just got the GE quiet AC on sale to replace an old noisy one. I also have lots of ceiling fans that help move the AC around the room.

My husband is always freezing, but he can put on a jacket!

I also found my favorite cotton jammies are no longer my friend as they stay wet. I bought a couple of cheap polyester type short night gowns at Walmart the seem to dry quicker.

REPLY
@flowergal

I use portable fans, wear linen cool clothes and use an ice neck wrap. Amazon sells these bandana looking neck wraps that can be wet then frozen. I keep several in the freezer and swap them out.

I am also very lucky to air conditioned car seats which are invaluable!

I too need the room temperature around 67. I also bought a "cooling" blanket also from Amazon.

CVS sells a cooling gel and cooling neck patches. They come in handy when you aren't near a freezer.

I had to take off the mattress protector I had on as it was too hot. I keep a beach towel on top of the mattress pad. I can then wash the towel and sheet and not the mattress pad as much.

This summer has been hot! I walk the dog in the a.m. and spend the rest of the time in air-conditioning.

I just got the GE quiet AC on sale to replace an old noisy one. I also have lots of ceiling fans that help move the AC around the room.

My husband is always freezing, but he can put on a jacket!

I also found my favorite cotton jammies are no longer my friend as they stay wet. I bought a couple of cheap polyester type short night gowns at Walmart the seem to dry quicker.

Jump to this post

Thank you @flowergal. I appreciate your suggestions very much. My husband wears a winter hat inside the house because he feels so cold. It is funny to know that it is 95 degrees outside with 90% humidity and to see him in a sweatshirt and hat as soon as he gets cooled down. I will let him know that he is not the only husband who has a hot wife. 😀 😀 😀

REPLY
@gillbell84

I'm 8 months out and doing great. Skiing in Jan& Feb and traininga lot (running and crossfit) so physicslly well - first two weeks post mastectomy as very hard I won't lie but then once drains were out and pain was more manageable I just listened to my body. It's a big surgery but it was the right decision for me and I had reconstruction and lipografting in February. This was much easier and quick recovery.

Jump to this post

May I ask what type of reconstruction you had? Any radiation or tamoxifen?

REPLY
@lindaisling

Hello Everyone!

I was diagnosed with breast cancer last year. I am so grateful for the knowledgeable doctors and nurses who treated me. I was diagnosed with DCIS and had a lumpectomy. It was restful to have professional, respectful, and kind caregivers. They found that it was invasive and seemed a bit surprised. So back to surgery, I went. I am very fortunate that they did not find anything in the lymph glands. I had 5 sessions of high-level (whatever that may mean . . .) and I was grateful for not having to drive a 2-hour round trip 5 days a week to receive radiation. My last diagnostic mammogram was clear. I am in my second year of taking Anastrozole and the hot flashes are very hot and long-lasting. My medical oncologist mentioned that there was a new drug for hot flashes but it is contradicted in my case. The only way I can function is by keeping the ambient temperature at 68 degrees and sitting in front of a fan. I am wondering if anyone has suggestions on how to deal with the hot flashes. Towards the end of most hot flashes, I seem to develop a headache which can make me hypersensitive to light, and lightheadedness. Anyone who can share how they coped or are coping with this side effect of Anastrozole will be in my debt. 🙂 Linda

Jump to this post

Did you have the 5 treatments 5 days in a row? I am over 1,000 miles away.

REPLY
@meeshodge

Did you have the 5 treatments 5 days in a row? I am over 1,000 miles away.

Jump to this post

I had them on Monday, Wednesday, Friday, and Monday and Wednesday the following week. I hope this helps.

REPLY
@meeshodge

May I ask what type of reconstruction you had? Any radiation or tamoxifen?

Jump to this post

Hormone negative so no treatment post surgery. I had over the muscle reconstruction (prepectoral) with silicone implants. No restrictions or pain since my recovery - lipo has worked well but think I will need a second one as left breast didn’t take as much as the right side. Overall happy but have learned with reconstruction it’s always multiple surgeries to get the best outcome.

REPLY
@lindaisling

I had them on Monday, Wednesday, Friday, and Monday and Wednesday the following week. I hope this helps.

Jump to this post

it does, thank you.

REPLY
Please sign in or register to post a reply.