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Spinal Cord Stimulator Removal
My Medtronics SCS stopped working after about three years. A NEVRO rep talked me into having one of theirs implanted. They had to use an adapter to connect Nevro unit to Medtronics lead. As a result, I cannot have an MRI. Also, the Nevro did not help at all. I would like to have all the SCS stuff removed (or, at least, the NEVRO battery replaced with a Medtronics) so I can have the MRI that my pain specialists seem to want very badly. Anyone out there have this experience this?
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we both have fibromyalgia and polymyalgia rheumatica = however, we each have additional chronic illnesses - the two mentioned here are genetic (which doctors finally admitted to = they denied it for years)....we knew that it had to be since we were having the identical pains, we were unable to walk on the same days (weather-related) and our appetite, sleeping habits and "brain fog" was happening on the same days and time...thank you for allowing me to talk about all of this = it feels as though all this build-up of emotion and pain has lessened greatly....God Bless you and yours.
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1 ReactionIf only the medical community could better pinpoint the causes of our severe pain... and then be able to help to minimize the pain.
I wish you well. My prayers go up for you and your son.
Good news fellow Mayo Clinic Connect posters. I was finally able to get scheduled for an MRI at the end of June. Of course, I have been more or less putting all my eggs in this basket. My fear is: a) the MRI reveals no serious issues, or, b) it reveals a lot of bad stuff that will require a lot surgery. For now I will choose to believe that God is still in control and has only good things in store for me, As Jeremiah 29:11 reminds us:
For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future."
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1 ReactionThank you.....totally agree....maybe someday??? All we can do is research, hope and most of all pray!....Our prayers going up for you as well.
Thank you!
CRPS, fibromyalgia, and Small Fiber Neuropathy sufferer. Had a Spinal Cord Stimulator implanted in my 2nd, 3rd and 4th vertebrae and unfortunately I was unable to ever use it, it made my CRPS much worse. I’m scheduled for removal surgery but would love to talk to someone who has gone through the same. I’m told this is a really tough situation because of the placement being in my upper neck. I’m in need of an mri and of course you can’t get one with this stimulator. Any feedback is appreciated!
Well, once again my hopes of finding an answer to my sudden increase in pain have been dashed. The much-awaited MRI apparently did not reveal any suspicious characters hiding in the wings. Two docs looked at it it. This week I had an EMG as proposed by my new pain doc who had given me another glimmer of hope. That was also dashed to bits when the EMG did not reveal anything monumental except that I have some neuropathy. Big surprise! The EMG doc suggested an epidural. Ha, ha! I have had more epidurals than I can count! To add the cherry to the mess, my tele visit with the doc I saw last week was canceled. Now, I am scheduled for a followup visit with the EMG doc in THREE WEEKS! So, three more weeks of enduring this crippling pain. I am going to be emailing the original doc to see if it is possible to reschedule the tele visit. Oh, happy day! Between my bloodwork, EMG, and MRI, I should be healthy as a horse...NOT!
You can have an MRI using some of the newer machines. I had my SCS removed after several months and the procedure was a piece of cake. No residual effects except to get rid of the damned thing. Waste of time, energy, money. I am sorry for your trouble. I believe I know what you are going through.
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1 ReactionI'm considering having my SCS removed, since it hasn't been any help for several years. I'm glad to hear that removal is a piece of cake. My Abbott SCS is MRI compatible, but not all are. Last MRI I couldn't get the thing into MRI mode. When the Abbott rep came to try to figure out what was going on, she found that it would work if I kept trying it in different positions. Sitting, standing, lying down, twisting my body... I wish I had known before that that was a possibility.
I'm trying a new medication, hoping it will be effective.
Jim
Best of luck. I have been on this quest for years! I have tried so damned many meds I am tired and mad. Also SCS, lateral stimulator, 2 surgeries, 7 narcotics, LDN, PEA, fentanyl patches, buprenorphine patches, 7 different physical therapists, 3 pain clinics, thc, cbd, exercise, every “doughnut “ cushion on the market, 3 back braces, heat, cold, epson salts baths. Gettin damned sick of what seems to be a fruitless chase. I wish you much better luck!