I had IVig infusions for over 2 years but had to stop in February because I couldn't drive to the infusion center. I had infusions for 2 consecutive days every 4 weeks. I couldn't sense any change in my CIDP symptoms, but I suppose it's possible that it was helping to slow down the progression. I take 10mg daily of Prednisone for that reason.

I recently had a 4 week trial of Hizentra, and the second week the burning pain was gone. It stayed gone until the week after the last infusion (subcutaneous). Unfortunately my insurance denied it and has me trying Gamunex. I had 2 months of IVig infusions with the same lack of results as before with Privigin, so I convinced my neurologist to switch to weekly sub Q infusions. They start next week. I think that it's possible that having a weekly infusion keeps the medication in my system. I wish I had tried it long ago.

There are some people who have a reaction to ig, but I never have. The nurse asks every time if I want an antihistamine or Tylenol, but I take both every morning already.

Hizentra gave me a free 4 week trial of the sub Q infusions, and paid for a nurse to come and train me. I still can't drive post surgery, so I'm glad that it's possible for me to get the treatments at home, even if it isn't for the medication that was the first one to stop the pain after more than ten years of searching. That's life in the Medicare system.

Jim