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Has anyone dealt with REM Behavior Disorder (RBD )

Aging Well | Last Active: Jul 15, 2024 | Replies (22)
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@raebaby

I was married for 58 years until my husband died with Parkinson's disease. I found out on my honeymoon, much to my shock, that he already had REM sleep disorder at the age of 20. It's a big symptom Parkinson's patients have. We ended up in separate bedrooms.

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Replies to "I was married for 58 years until my husband died with Parkinson's disease. I found out..."
looplu79 | @looplu79 | Jul 13, 2024

I have only in the past three years showed signs of REM sleep disorder
Although I have shouted and kicked at nights it is usually a dream where I am
being held down etc
It is all over in minuites
I have never exhibited any violence towards my partner and for this I am grateful
However I am taking Apixaban for DVT and have fallen out of bed and hit my head on various occasions often requiring a brain scan
and visit to Emergency Dept
My consultant started me on Melatonin I now take 6 mgs nightly and my dreaming has generally become less vivid although I am told I chatter throughout the night
No falls for months now thankfully
I am also on
Venlafaxine for over 20 yrs so asked my doctor to allow me to come off I am
Now on a well controlled decreasing programme recommended by the Maudsley Hosp
I show no sign of Parkinson my doctor says but realise this is inevitable with Rem disorder
I am just thankful I do not have the tendency to attack anyone
Deeply distressing for all concerned I hope some solution is found
Best wishes

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