I have carcinoid cancer stage 4 diagnosed 2 years ago with tumors spread to liver and right kidney. I have had a right hemicolostomy. The only scan that can see my tumors are octreoscan. You need a cancer doc that knows what these are and schedule them for you. There are no carcinoid specialists in the city I am from and I would have to go to LA, Phoenix or salt lake to find one. I am currently on sandostatin shots once a month and those are working well for me. thankfully my doc has enough knowledge of this cancer to know what to do and as this progresses would be willing to listen to the specialists on how to treat. It is very important to self educate yourself and if no specialist available, find a cancer doc that is willing to answer questions and find answers