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← Return to 30 Years of Misdiagnosis.
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Just to clarify, are you advocating driving toward a diagnosis by way of joining AARDA and attending a support group?
Replies to "Just to clarify, are you advocating driving toward a diagnosis by way of joining AARDA and..."
I have to disagree. Autoimmune disease is not a new thing. Lupus was discovered in 1948, at Mayo in fact, RA not long after (not at Mayo).
http://centennial.rucares.org/index.php?page=Autoimmune_Diseases
Rheumatologists deal with these diseases as a core feature of their practice so I don't follow your proposing autoimmunity as a recent breakthrough or novel idea.
So, why do you think folks posting here would need to be guided to aarda.org or your study group to gain insight into their condition(s), which may or may not be autoimmune related?
Call me skeptical.
Hi John, I agree with you, autoimmune diseases have been around long before you and I were born, what I am trying to do is to create a new disease category, as there are a whole lot of people who are just kind of stuck on a singular disease category such as Lupus, or Diabetes or lets say Shingles and so we have many pharmas making buco bucks on these singular disease treatments when there could be someone who suffers from overlapping or mixed connective tissue diseases and can not tolerate treatments for each of these diseases. There would be a whole lot of side affects and so much more damaging than good. We also don't need more drugs, we need more research on the causes of these debilitating diseases. We now have an Autoimmune Center in Midland Michigan that one can go too if they have a difficult time getting diagnosed properly. I welcome you to check it out. Its all about bringing awareness, education and research to over 100 autoimmune related diseases.
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No I am the founder and volunteer leader of this autoimmune support group and it is the first in the nation of its kind. We are located at Henry Ford Pavilion, Clinton Twp, Mi 48038 4th floor, we have a meeting tomorrow night and it is from 7;pm to 9;pm. We also have a few members from Inspire as well joining us as there isn't much information out there about these autoimmune related diseases. Most professionals have only hrs of schooling on the immune system and some do not know how to say Scleroderma.
My group is free, educational and we always have professional speakers to discuss chronic illness's and autoimmunity.
I do not work for http://www.aarda.org but I am a volunteer for them as they are a nonprofit association.