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I have a minimum eleven meningiomas is this normal?

Brain Tumor | Last Active: Sep 18 1:26am | Replies (29)

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@rwiltgen

Hi I had symptoms in 2018, being cross-eyed in my left eye, that lead to an immediate MRI.
A small, but odd mass lite up near my left #6 eye nerve and brainstem. The first group of doctors wanted to do an immediate resection, within 1 week, and have it biopsied. I decided to get a second opinion. Both groups said that it was most likely a meningioma. I was told that meningiomas are very common, slow growing and often are never diagnosed. I asked why a full MRI is not given to all people every 10 years starting at 20 so that we can catch these abnormality's early. They proceeded to tell me of a story where a neuro medical student who decided to have an MRI done on his head, he had no symptoms, and found a sizable mass on his brain. At this point the alarms go off, the anxiety builds and his life changes. There is a good chance that the growth would have never developed symptoms in his normal life time. The moral of the story is that none of us are normal, and many of us never know it. My advice is trust your doctors and if you do not find another one. BTW, the end of my story is a very good one. I had the mass partially resected in November of 2020, the biopsy confirmed it was a meningioma, in February of 2021 I had gamma knife Laser surgery, and in November of 2021 they straightened out my eye, my left eye was crossed almost 30 degrees. Absolutely amazing and I am forever grateful.

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Replies to "Hi I had symptoms in 2018, being cross-eyed in my left eye, that lead to an..."

as a former Medicare fraud investigator, i can tell you the “economics/policies” of health care and healthcare policies don’t make it feasible to have an MRI unless “it’s medically necessary”. i just looked at the billed price of my May 2024 brain/orbital MRI done
in an academic hospital setting—almost $17,000

did you have adverse effects from
the gamma surgery?