Im 49 years old and I found out last September that I have an inoperable menagona wrapped completely around the left optical nerve. I began having symptoms of not being able to move My eye amoung many scary episodes caused seizers, passed out woke In hospital. But this diagnosis was not what I thought was happening. I've gotten a second opinion. If they attempt to remove it's encased or something around a vein it's so complicated and scary. I had radiation treatment in December in attempts to shrink the mass. My symptoms are getting worse and It frightens me because my thought process or the way I feel or even having to reach down to touch my left leg to make sure it is still there. I've ignored these symptoms as I began having the leg sensations weird like I couldn't tell where my left leg was. I was 29 when those symptoms began. So yes it was very large when it wad found. I got the call within hours from the carti cancer mri and neurologist. Although it is not cancer I also still have an oncologist doctor and a nurosurgeon and have so far had had one treatment of radiation and will have to continue for the rest of my life to keep it small or I pray it does. But I want it removed but I'm told it would be detrimental from possible death, paralysis blah blah blah kind of want to give up because it gets worse or the symptoms feel like they do. And my youngest child is 14 years old.