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@cehunt57

@sueinmn I’m unfamiliar with metallosis or MoM hips, but it sounds like these things are working out for you. Thank God for your RN daughters! I found that interesting that you mentioned the history of thyroid nodules. Was there a connection between those and the near thyroid storm? My youngest daughter had a thyro-glossal duct cyst that was surgically removed when she was in college. Years later she was diagnosed with hypothyroidism and put on Levothyroxine/ Synthroid. This past spring she was diagnosed with a breast cancer. She is getting chemo every week and an immunotherapy every third week. Her last immunotherapy was last Friday. She felt weaker and more tired than usual but attributed it to overdoing it on a short camping trip over the 4th holiday. Then “all hell broke loose” Tuesday 7/9. She had new issues including chest pain, heart palpitations. She ended up spending the night in ER where it was concluded the immunotherapy became toxic and destroyed both her thyroid and adrenal glands! Neither are functioning. Both are being replaced with medication which was started in ER. She got sent home yesterday morning at 5 am.
Sorry this is getting long and straying from the topic of hyperthyroidism. I should have put this in a PM. Mama bear is stressed over her ailing cub(s).

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Replies to "@sueinmn I’m unfamiliar with metallosis or MoM hips, but it sounds like these things are working..."

Oh Cheryl, How scary for all of you. The endocrinologist did not think there was a connection between the nodules and the Graves - and it turned out she was right - it was the metal toxicity, which has since been well-established as a potential cause. (I just saw pics from that time - it was over 12 years ago!

I hope getting off the immunotherapy helps her - it seems like there are quite a few people getting mixed results - I guess this learning curve is another reason why they call it "the practice of medicine" - it's always a learning process.