← Return to Support for small fiber neuropathy with cold intolerance sensory nerve

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@julbpat

Well, that could be true for me! I think I’ve been taking it for about four years. When I started, I sometimes only needed it twice a day. Now I really need it 4X a day. I even keep some by my bedside in case I wake up early with a parched mouth.

My sweating has progressed as my SFN has progressed. I don’t sweat as much in most of my body anymore. It is concentrated in my scalp and face. And I mean dripping within 10 minutes. I know that excessive sweating is part of SFN, and I would expect it to get worse over time. But I never paid attention to the pilocarpine intake, and timing! I’m going to start monitoring that. The pilocarpine is effective for up to five hours, I think. That makes it easy to monitor whether it’s causing an effect.

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Replies to "Well, that could be true for me! I think I’ve been taking it for about four..."

Yes mine is mainly the scalp , face and arm pits, usually within 10 minutes. Since starting back on it the new rheumatologist just put me on one pill but my tongue is parched all the time!