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People with Fecal Incontinence: Psyllium Fiber?

Colorectal Cancer | Last Active: Jul 15 9:58am | Replies (13)
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@rjjacobsen

I have bad days as well so I try to avoid variance from day to day and try to eat/drink/take MM consistently - that variance is what messes me up.

I try to limit fluid intake to a quart and a half unless I'm doing something to cause sweating... drinking over that amount encourages the diarrhea. Today, I was working outside in 84 F heat so I drank more water than normal. Even then, I don't over water because of the consequences. I avoid soda entirely - the non-diet (sugar HFCS) versions encourage diarrhea and I'm allergic to most diet pops. It is difficult to adjust the water and the psyllium husk powder based on activity. I do drink (and recommend) G-zero (Gatorade - zero calorie) or G2 (Gatorade - half sugar) or equivalent. I use this when I've been very physically active.

Yes, drinking lots of water is a good thing for most, but it is counterproductive to what the psyllium husks are doing. I think, but don't know, that you can increase water and psyllium husk powder proportionally if you are thirsty. I've thought about testing this, but haven't yet. I do know if I overwater the diarrhea returns and quickly. Ick.

I don't bother to count my fiber intake in a day.

Hope this helps.

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Replies to "I have bad days as well so I try to avoid variance from day to day..."
jmy75 | @jmy75 | Jul 11 4:58pm

My problem is that I have to do this for dad. He won't participate in his own Healthcare.

So when I need information from him he sometimes tells me something useful and sometimes hides stuff from me.

So far what seems to be working is immodium/lomitil, psyllium fiber, moderate water, and no caffeine, and no artificial sweeteners. And by "work I mean" 3 accidents a day instead of 6

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bevjoy | @bevjoy | Jul 15 9:20am

Thanks so much. My one gripe about this surgery was no substantial after care nutrition advice. My surgeon prescribed Cholestyramine because of the constipation side effect. I'm not taking it because of other potential side effects and I want to work with the husks first. I've just been overdoing the fluids and under-doing the husks. Your advice is so helpful.

I experimented yesterday with increasing my p husk capsules and it did make a difference, at least in the short term. I'm going to follow your suggestion about fluid intake and have measured out my daily water allotment. I believe that I was nervous about hydration and small intestine blockage. But, I'm willing to give it a try.

I also eat all bran with blueberries in the a.m. and it helps.

Do you eat anything you want or do you limit spices or other foods? I get very confused about what to eat and read about SIBO and the FODMAP diet. It feels overwhelming. Any thoughts? Do you take any probiotics or digestive enzymes?

Since I have genetic recessive mutyh-associated polyposis (MAP), I need to get a sigmoidoscopy (even tho no sigmoid, but he can check the illieum for polyps). Also, get an upper endoscopy annually to check for polyps. I trust my gastro, but very nervous about doing the prep..since it will put system into a loose mode.

If you don't mind, I may post an update after a few weeks. There aren't many of us around with a TC.

Thanks again!

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