Thanks for the info! What you had to go through with your husband to get a diagnosis of GCA is absolutely appalling! Not having doctors believe you is so aggravating, especially when it comes to something as serious as GCA.

I already had osteoporosis when I went on prednisone almost a year ago for PMR, but I am also taking a bone medication to help offset further bone thinning. Plus eating lots of calcium rich foods, and taking calcium and vitamin D supplements with added vitamin K and boron. I exercise every day, and attend Tai chi classes twice a week. I can only hope all this will help protect me from fractures. I'm currently on 10 mg of pred down from 15 mg, and can't seem to go much lower than that without a return of PMR symptoms. I'm seeing my doctor in a couple of weeks to touch base and see what direction to go in from here. I don't have a rheumatologist.