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Thanks so much for your thoughtful reply.
I have wondered if I have PMR and been told I don't (with an indulgent smile) by my PCP and a rheumatologist, orthopedist, and chiropractor. But I wonder.
I have had strange pain that ISN'T like working-out pain, starting maybe a year ago when I started adding weight to squats. Started with knee pain ( I do have severe osteoarthritis, per xrays) and progressed to generalized achey pain and weakness in both legs. Sometimes achey in thighs and calves for no reason I can think of. I now have to help pull myself upstairs with the handrail.
I'm working out in a somewhat half-assed way, working on a squat machine but haven't been able to progress beyond 60 lbs. Also clamshell kinda machine, trying to remember to do bridges.
My CRP and ESR were not impressive, though a little high.
I wonder if I'm being written off by all the docs because the pain is only lower body and my labs weren't exciting.
I'd welcome your thoughts. Sounds like yours started in your legs, also.
Thanks! D
Replies to "Thanks so much for your thoughtful reply. I have wondered if I have PMR and been..."
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Let's see...I can't recall your original post or if I replied to it. When I try to trace this post back, I'm directed to my reply to someone else, (hendry?) so thinking maybe you're referring to that post?
Anyway, trying to not repeat myself if I've already responded to you.
I was wondering if any of the docs think your pain is due to your osteoarthritis.
Are you taking steroids or other meds? I was thinking that if they thought it was pmr, they'd put you on pred to see if you got better. Supposedly, that's the test for pmr..or not.
Reading along until I got to to where you said you're pulling yourself up the stairs. Is that something that could occur with osteoarthritis? What do the docs say about that???
As far as being written off, I think it's ore a case of not being able to diagnose you.
For me, because I won't take 'roids, the mainline cooky cutter rheums won't deal with me unless I want to take shot after cortisone shot. The rheum who took my original rheum's place told me he thought all my bi-lateral pain was unrelated. Is he stupid or does he think I am? Perhaps both.
l wish I had more to share. Have an appt next week to get the Baker's cysts drained by an ortho. Be interesting (I hope) to see what he has to say. I don't want to see ANY docs. I've just had it.
As a side illustration:
I had my latest labs sent to my cardio to see if any of them looked concerning to him...quite a few were high and some were at the high end of normal, much different than before this
"surprise" presented itself in Jan.
Also sent him a portal note to get his take on the labs and if I should be concerned about any of them heart-wise.
He sent me a one sentence reply that related only to a question my internist had. Not one ounce of concern or caring. This guy was once the most thoughtful and caring doc I'd ever had. I couldn't praise him enough. It makes me so sad to see over the last couple of years how he's changed. Could be the stress from covid that still seems to be hanging over docs or the massive paperwork they're asked to handle for Medicare and other insurance, I guess. I've seen his notes after my visits. SO MUCH UNNECESSARY GARBAGE! And so CYA! What the hell.
When you're filling out 5 and 6 pages of junk for reimbursement to the point where you are unable to address an ailing patient, something is not right with this world...as if we don't know this already.