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Possible Autoimmune…undiagnosed

Autoimmune Diseases | Last Active: Jul 24 6:05pm | Replies (58)

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@lowrymal50

I am going thru the same thing. My ana was positive and titer 1:80 . I know I have lupus. I have all the symptoms and my neurologist will. Ot refer me. He said they were false positive. WHAT? I AM SO FRISTRATED. COVID HAS RUINED MY LIFE. I just got it again 3 weeks ago and it was worse than the other 2. Now I have Pnemonia from the covid. The body aches are horrible. I know I have SDN he says it is that. I told him NO ITS NOT!
My first neurologist retired. Told me I had lesions on my brain from.covid and had me doing infusions every 3 weeks for 9 months to boost my immune system. He thought I had MS. Then he retired and the new neurologist said the opposite. Nothing wrong with me. WTF? IM tired of fighting these doctors. I know my body! My quality of life has gone to shit. I'm 53 and was active. I have 7 grandchildren. I just had one 3 weeks ago and that is where I caught covid in the hospital. I masked up too. Soo. Just hanging out in my pjs all day watching TV with my husband. Good luck to all!

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Replies to "I am going thru the same thing. My ana was positive and titer 1:80 . I..."

@lowrymal150 an ANA of 1:80 is not, in my experience, enough for a diagnosis. But you have symptoms to be listened to. COVID is terrible for some of us. I hope you feel better.

Prayers for you & good luck also🌻 it’s such a pain having drs who won’t listen & do the correct thing….or to even really listen to what the patient is telling them instead of taking just a few symptoms & saying here’s your diagnosis. Don’t give up & keep fighting🌻 wish drs were paid by how well their patients recovered from an illness/health issues.