GERD issues
I am 22 years old. I don't smoke or drink. Growing up I can remember having a slight hoarse voice in the morning if I ate to late at nights. But never anything too miserable. It would go away within a hour after drinking water.
March 2011 on a Wednesday. I woke up with a hoarse voice that never went away. After a few weeks I started to get slightly worried so I went to my family doctor. I went 3 times over a course of 5-6 weeks and they had no idea after giving me multiple steroids and antibiotics that did nothing. I also had no pain in the beginning my throat didn't hurt at all. My only symptom was the voice. So they sent me to a throat specialist. (Audiologist) He did a throat endoscopy and told me I have GERD. He prescribed me omeprazole 20mg once a day. I changed my diet. I stopped eating hours before I went to sleep. I have never been a soda drinker, I am not a fan of fatty foods. The fattiest thing I like to eat sometimes is chocolate.. So I gave that up. I don't eat big meals. I have always been a snacker. But I didn't seem to get that much better so back as planned in 6weeks. He told me to start taking it twice a day. my throat started to hurt and become really sore around this point. I would wake up in severe pain, and it would hurt through out the day. I would take 2- 20mg omeprazole and I would also drink baking soda mixed with water whenever I couldn't handle the constant burn anymore.. I wouldn't drink the baking soda/water at the same time as taking the omeprazole. I made sure I did that hours apart from one another.
So about 10-12 weeks later my symptoms got much worse. It wasn't working. Nothing seemed to work.
So I went back to the doctor. They did another endoscopy and my throat is more swollen than the first. It's starting to swell up even higher around where my thyroid is.
I started having chest pains and it has become hard to swallow anything.
My heart rate gets insanely high in random occasions.
I feel a knock/thump whenever I swallow.
My throat is always hurting.
I am nauseous when I eat.
It's painful to eat or drink anything; I have lost almost 30lbs because of it.
So I have had a endoscopy twice now,
I got a barium swallow done and he told me I have acid reflux. probe test done,.,Blood work....How many more test need to be done?
I haven’t heard my voice in a year now. It's to the point where I am becoming depressed and I ignore talking to people. I ignore hanging out with friends, because if I talk to much my throat becomes incredibly sore to the point where I won't be able to sleep. I can't yell or whisper. I have one tone. If I yell then I’m pretty much out for the rest of the day because my throat hurts so badly.
I am thinking about going to the Mayo Clinic. Has anyone else been through this? Do you think they will be able to help? Could it be something else?
Im desperate.
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ese,
This is very interesting. Tell me more, if you don’t mind.
I’ve been on Protonix for years. I know it is bad for me.
I took substantial doses of HL Betaine before meals and bile drops. (Don't think I have them available to check here to check exact name.
Also I laid off of simple carbs for a while until my other metabolic issues (Metabolic Syndrome; overweight, Insulin Resistance) cleared up. I now eat them again in small and rarer quantities.
I can't tell you how bad my health was in part because of the PPI long term use. I think Zantac contributed to breast cancer and another PPI a doc put me on for gastritis caused dreadful anemia, "cured" finally by iron transfusions.
I am almost 86 and all considering have not been healthier in years.
Check if your problem is lack of acid this way. Take a TBS or 2 of apple cider vinegar in water. If you feel better rather than worse, the substantial odds are that your underlying problem is lack of sufficient acid. IT CAN BE FIXED. The body desperately looks for healing and homeostasis and knows how to do it if given the correct inputs, i.e. overall nutrition . Variety is key and I swear by hefty doses of all sorts of supplements. but recommend most highly Taurine and Gly-Nac (Glycine-N'acetly cysteine ) which is the precursors your body uses to make Glutathione, the main antioxidant the body makes. Look up all sorts of scientific reports on YouTube.
@ese I have taken apple cider in water, as well as apple cider supplements, and both have caused severe acid reflux leading to chest pains. Lansoprazole is the only thing that keeps me comfortable - in addition to having the head of my bed raised.
Glad you have found what works for you. Glad I found what worked for me without need for PPIs. We are all different but it is worth trying to get oneself off PPIs because of other effects of long term use.
Use of apple cider vinegar was not suggested as a "cure" but as a test of whether one's underlying issue was an excess or possible lack of sufficient stomach acid. If ACV gives one some relief it is, I believe diagnostic that underlying issue may be lack of rather than excess acid.
My father lived off of TUMS. And I have found that Bicarbonate of soda gives immediate relief on the exceedingly rare occasions I may have a night bout after a particularly poor restaurant meal. For me, it avoids long term use of PPIs...but as I said, I cannot believe how much I have managed both to wean myself off PPIs (which must be done gradually lest one trigger a God Awful rebound since your body keeps trying to make additional acid pumps to compensate for the PPI use (or at least mine did). I just wanted to say that for some of us life without PPIs and without GERD is in fact achievable.
I was on omeprazole for four years before slowly weaning off due to DX of chronic kidney disease, which can be a side effect of a PPI (altho my GI doc doesn't believe it. However, my eGFR value increased significantly after stopping the omeprazole). I rely now on the low acid, whole food diet, and lifestyle changes. If I follow all the rules I feel good. If I don't, well, I am not too bad off and I revert to following the rules. I have had my esophagus stretched three times and if I eat properly, the esophagus doesn't develop strictures, and therefore no stretching needed. I also tried taking an HCL betain capsule to experiment on whether I had too little acid; the answer, nope! ENT doctors Aviv and Kaufman have free info online on how to manage GERD and respiratory reflux without drugs. I sleep on my back with head elevated, and drink filtered tap water with alkaline drops added, as examples of lifestyle/diet changes. Personally I wanted to avoid drugs and surgery, so I am motivated on doing the diet/lifestyle thing. It is certainly harder to do, but I don't worry about the side effects, and apparently I don't have a hugely complex situation so my body responds to the natural method. Good luck on whatever choices you make!
The same exact thing happened to me in march of 2023. The only thing different is I started taking papaya enzyme tablets after eating. I'm 70 years old with a history of stomach problems ( stomach obstructions, ulcers, bleeding ulcers) and it's very scary feeling when gerd happens. Hopefully for you it heals up. I had endoscopy shortly after it healed and the doctor said it looked good and didn't need stretching. It's been good since (n.o.w.). I have been on protonix and pepcid for a long time and the only thing different is that my doctor put me on a low dose of paxil for anxiety. The hardest thing was giving up coffee, I now drink tea.
Went to the GI Dr. they said to take Pepsic AC max 20mg, twice a day for 2 weeks. I took it for 4.5 days and was mentally destroyed. Anxiety, depression, and an off feeling in my gut. I quit taking it and a couple days later got this horrible bitter taste in my mouth that I still have 7 days later. I'm hoping it will go away. Has anyone else experienced this on this drug? Thankfully mentally I'm feeling better, never again will I take this drug or any PPI!
I suddenly got a metallic, turned bitter taste in my mouth last September, but I wasn’t taking Fanotidine when it happened i had just taken an antibiotic. Sadly, I still have it.
I’ve been taking provide sane dose for a few months along with Nexium. Luckily it has not affected me that way at all. But I weaned myself off of Nexium because I know long term use is not good for your bones or even your heart I have read. So now I just use Pepcid. And Mylanta. I hope your gerd is better!
There are natural things you can try for your Gerd. Have you tried peppermint oil?