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@cmhgiddy24

Hi, thank you! Yes, I do intend to address all my side effect issues with the medical oncologist next week and see what she says and I AM very pleased my treatment is keeping things at bay. I am also interested in possibly speaking with a NET specialist at some point, but I don't live near any Mayo Clinic locations. I'm very familiar with Jacksonville as my husband and I helped family out there for several months after my brother-in-law had a lung transplant a few years back so if I can be in the area again for a time, I would definitely pursue. Also, my nephew works in radiology at Ohio State University Med Center and I spoke to a dr. there who was a friend of his (he's since left) who was a NET specialist and he pretty much concurred with my treatment the way things are being handled right now. It's really tough to get in there anyway so unless my situation would worsen significantly or I would need different treatment, I'll probably stay where I am for now. The hospital system here where my surgical oncologist is located, is just starting to venture into the NETS field. He is very on top of his game, I have alot of respect there, and he has already told me that if I end up needing any different treatment than what I'm getting, I will probably need to go to OSU for it anyway. I could also go to Cleveland Clinic, but I would probably choose Mayo if possible, very impressive there. I am very aware of my options and thank you for responding, I really appreciate it!

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Replies to "Hi, thank you! Yes, I do intend to address all my side effect issues with the..."

I am glad that you are aware of your options, @cmhgiddy24. You sound like a proactive person who is engaged in their medical treatment and that is very important. You might also consider attending Mayo Clinic's virtual support group that meets on the first Thursday of each month. It originates from Jacksonville and is facilitated by a Mayo Clinic social worker. There are often guest speakers from Mayo Clinic who speak on various topics related to NETs with a question/answer time and then time for the members to talk about their questions and problems with each other. I'm sure you would find helpful information and also support from that community.

I look forward to hearing from you again. Will you continue to post as you have questions or concerns?