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Diagnosed with Stage 4 Pancreatic Tail Cancer: No Symptoms Yet

Posted by edder @edder, Mar 27, 2018

I’ve recently have been diagnosed with stage 4 ductal adenocarcinoma of the pancreas tail with secondary metastatic peritoneal carcinomatosis. I will began folfirinox chemo next week. I only have slight stomach aches, but nothing extremely bad. I run 3.5 miles 5 days a week. I am 59 years old. When will I began to show more symptoms. I’m healthy otherwise.

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shell from Canada | @shelleyderish | Jul 11 1:01am

Thank you. My husbands tumor markers are 120,000 and now his feet are swelling. I’m worried 😢. He has so many issues that he has overcome prior to this cancer Amazing drs say. Just don’t won’t to stop he does not give up. Even with heart issues , lung , blood issues. So he needs team

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mimimmx | @mimimmx | Jul 11 8:18am
In reply to @sheridanb "Dan has mets in lungs, bones, and lymph nodes. The chemo stopped the progression of the..." + (show)
@sheridanb

Dan has mets in lungs, bones, and lymph nodes. The chemo stopped the progression of the tumors... well, we'll learn more tomorrow about what is going on with the bones along his spine... but did not result in much shrinkage of tumors. He didn't seem to have too much problem with the first 4? chemo treatments, but I won't lie... it has been extremely hard during the next 8. He had such fatigue that he barely got off the couch or bed. Taste buds changed so nothing tasted good and he lost about 20 pounds when he really didn't have any extra to lose. We tried about every beverage you can think of to find something that was tolerable for his taste buds, but we continue to go in for extra hydration infusions as he just is unable to drink enough. The CA19-9 test results continue to drop which is showing the chemo regimen is working. But the numbers are still high compared to normal. Now he is on a maintenance program of chemo and is feeling slightly better, but not great. Hoping the further he gets away from the full on chemo cocktail the better he will feel. Good luck to your husband and to you. It's a journey...

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During my Folfirinox treatments last year, my oncologist put me on both Olanzapine (helps with appetite and fatigue) and Ritalin (helps with fatigue). Also had the Neulasta shot with every treatment to prevent low white blood cell count that can lead to fatigue and infection (neutropenia) as well. All of which helped me greatly to function better during treatment. I stopped both drugs a few months after my last infusion.

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2 replies
shell from Canada | @shelleyderish | Jul 11 12:16pm
In reply to @mimimmx "During my Folfirinox treatments last year, my oncologist put me on both Olanzapine (helps with appetite..." + (show)
@mimimmx

During my Folfirinox treatments last year, my oncologist put me on both Olanzapine (helps with appetite and fatigue) and Ritalin (helps with fatigue). Also had the Neulasta shot with every treatment to prevent low white blood cell count that can lead to fatigue and infection (neutropenia) as well. All of which helped me greatly to function better during treatment. I stopped both drugs a few months after my last infusion.

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How many treatment? Oncologist says indefinitely ?

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sheridanb | @sheridanb | Jul 11 12:27pm
In reply to @mimimmx "During my Folfirinox treatments last year, my oncologist put me on both Olanzapine (helps with appetite..." + (show)
@mimimmx

During my Folfirinox treatments last year, my oncologist put me on both Olanzapine (helps with appetite and fatigue) and Ritalin (helps with fatigue). Also had the Neulasta shot with every treatment to prevent low white blood cell count that can lead to fatigue and infection (neutropenia) as well. All of which helped me greatly to function better during treatment. I stopped both drugs a few months after my last infusion.

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Thank you. I'll make a note of that so if Dan goes back on full chemo treatments again that is something that might help.

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