@vmorton Hello, I have not been diagnosed with this, but was a little familiar since a friend had it. Here are some papers on it from Mayo specialists:
https://www.mayoclinic.org/medical-professionals/pulmonary-medicine/news/expiratory-central-airway-collapse-is-challenging-to-identify-and-underdiagnosed/mac-20510151
https://www.mayoclinicproceedings.org/article/S0025-6196(20)30258-5/fulltext
It looks like there are some treatments available, and more emerging. Are you being treated at Mayo or another lung center that specializes in complex cases?