1. < Neuropathy

Does SCS help with numbness and tingling?

Posted by domiha @domiha, Jul 7 8:00am

I've had a lumbar laminectomy but still have radiculopathy that causes numbness and tingling in my feet. The numbness affects my balance/gait. I've read that a Spincal Cord Stimulator can help with the numbness/tinging. Has anyone here found that to be true? Best wishes! Mike

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solobeee1 | @solobeee1 | Jul 11 6:11am

Neuropathy is listed on this link:
https://ldnresearchtrust.org/conditions
LDN in its 50mg dose is compounded down to 4.5mg for relief of many conditions.

Dr Kapural was introduced to us in a zoom seminar from the Foundation of pereferal neuropathy-read more here.
https://www.castleconnolly.com/top-doctors/leonardo-kapural-pain-medicine-98cc002280
Pain management doctors prescribed it originally for me but now my neurologist & my GP prescribe it for me The. Neuropathy success stories group on Facebook had a seminar with Dr Kapural.
There is also a Facebook LDN group with 70,000 members you should look into.
As you learn all about it, you too could become an advocate.
I’ve been on it for a year & a half & it truly works for pain & I’m sticking with it.
BTW- my doctors are at U of Miami & Mt Sinai & Publix does the compounding. Because it has to be compounded many doctors are not familiar with it’s alternative uses but they are learning.

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srush | @srush | Jul 12 6:04am

I have tremendously painful neuropathy in my feet and lower legs. I tried a SCS and it was worthless. Had it removed after an honest-to-goodness trial. Good luck to you. Lower limb neuropathy is truly nasty.

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solobeee1 | @solobeee1 | Jul 12 8:54am

If you don’t try LDN you’ll never know how well it works.

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lautwell | @lautwell | Jul 12 9:33am
In reply to @beeonthyme "You are personally taking LDN? What are you taking it for? I read some of the..." + (show)
@beeonthyme

You are personally taking LDN?
What are you taking it for?
I read some of the resource articles you provided. I didn't see peripheral neuropathy in the list for helping that particular type of pain.
I think what I read was; LDN fills in opioid receptors.
And helps people with alcohol addiction? I don't drink alcohol, not even a beer or wine. How do blocked opioid receptors help with pain? I can't get the message box to allow me to go back and see if what I wrote was even coherent...but I hadn't heard of LDN before and it has never been mentioned by any of the vast network of Doctors I have seen.

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I’m following your question. A friend suggests I ask about LDN as it has helped her. (She did have addiction issues in the past.) I’m specifically interested in treatment for peripheral neuropathy in upper extremity.

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solobeee1 | @solobeee1 | Jul 13 7:07am

Learn about LDN here:
https://ldnresearchtrust.org/ldn
& dosing info here:
https://ldnresearchtrust.org/sites/default/files/2020-04/Dosing-Info-a4_0.pdf
It takes several weeks to feel the benefits.
Start at a very low & go slow.
Also, join the LDN facebook groups 70,000 members who share there stories.
I had sever pain in my feet for 14 years & now I have almost none but unfortunately the numbness continues.
Any pain management, neurologist or GP can prescribe it but you might have to educate them & some, unfortunately, are not aware or open to it.
Find a way & you'll become an advocate.

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mbermudez69 | @mbermudez69 | Oct 2 5:36am
In reply to @beeonthyme "I had a SCS implant May 23. I tried Abbott spine stimulator implant trial and it..." + (show)
@beeonthyme

I had a SCS implant May 23. I tried Abbott spine stimulator implant trial and it didn't work for me. I waited a couple months and tried another SCS, this one is by Nevro. It has a charging plate you must charge it daily. There are 35 possible levels. I have been moving up a level every 2 days. When I did the trial, I was on level 21 when my trial was over. I did feel some relief. I would say 50% improvement. As I have had neuropathy over 20 years, non-diabetic neuropathy....idiopathic neuropathy...I was happy with the improvement. I got the permanent nevro implant and I am on level 28. I have walked so little because of pain, that I have really poor stamina. I am trying to build my stamina and strength back. I'm 69 years old. I take high doses of pain medication. I take Meloxicam Amitripyline gabapentin. I was prescribed 8 gabapentin a day and it turned me into a zombie. I slept all the time. I finally weaned down to 2 to 1 a day. The only reason I take the 1 gabapentin, is I read it messes with your heart if you stop!!! And I was having heart issues. I got a echocardiogram and a stress test and my heart was deemed healthy.
I'm calling my rep tomorrow to ask if I can move to program 5. I will only have 7 clicks left to help me deal with pain.

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Although it can be frustrated, I went to many settings and months thinking that it was a bad decision but thank God, we came to find good settings that gave my life back, so keep trying dont give up. It works of it is implanted for the right reason, blessings

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