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Clothing & Allodynia Help

Neuropathy | Last Active: Sep 6 11:04am | Replies (40)

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@pnwmom79

Thank you for posting this. My 12 year old daughter has severe allodynia due to Small Fiber Neuropathy from Lupus. She has been unable to tolerate nearly all fabrics since she was 7 and we can’t find anything that makes it better. The only thing she can tolerate for some time is something smooth like a windbreaker or nylon. That’s all she wears at this point. I hope you can find something that works but I know what a nightmare it is.

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Replies to "Thank you for posting this. My 12 year old daughter has severe allodynia due to Small..."

Have you tried clothing made for children with autism? They often have sensory issues with clothing. There may be some options your daughter could wear.
Here is a site with a list of options. I have not purchased any so can’t recommend any one company.
https://www.abtaba.com/blog/clothes-for-children-autism
You might also check with the local group of parents of children with autism. They could maybe be of more help!

If “smooth” fabrics are comfortable for your daughter, I would suggest checking out “rash guard” tops. I find that fabric to be smooth, very light weight and cooling. I wear them in summer as regular tops just because they are so comfortable and come in many different prints and colors. And they come in lots of bright colors for a young girl. Lands End has a lot of choices (long and short sleeve t-shirt style, hoodies, zippered lightweight jackets, etc.). Go to landsend.com online and search for rash guards, kids, to see what they have.

There are many other places you can find them, including Amazon.

Good luck to you and especially to your daughter!