← Return to Anyone have discomfort or pain when tapering off prednisone?

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@victoriab

Hi
Yes I had tremendous trouble tapering and would suffer with fatigue and aching joints and my mood would lower, essentially rheumatologist and endocrinologist said thats how it will be for you so I gritted my teeth each time i decreased and now, 1 week on, no prednsione. I have low mood, aches and pains but my inflammation markers aren't raised I would not take prednisone for me again I had too many side effects and tapering was really difficult. @ years from 20mg to none. I use a heat pad for my lower back and shoulders when in pain and that helps but the last rheumatologist visit told me it would be months before my body recovered from the effects of the prednisone, so I accept that and take a day at a time I wish you all the best. I never found a magic way to taper just ended up gritting my teeth and doing it until I got to 5mg often would have a day or 2 in bed when I tapered as would feel so unwell. Everyone is different but this site has been so helpful to me in knowing my situation wasn't unusual

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Replies to "Hi Yes I had tremendous trouble tapering and would suffer with fatigue and aching joints and..."

Thank you Victoria that’s really helpful and just knowing others have the same issue helps me to know it’s not just me. Stupidly I just thought when I finished the steroids I’d be back to normal if my bloods showed no inflammation! How wrong was I but like you say grit our teeth & know hopefully it will ease in time

I meant to add that as I had severe adverse affects within a month of taking prednisone but this wasn’t identified as prednisone related until I had been on it 7 months when it was not possible to do anything but taper slowly - it is now written in my medical notes it is not to be prescribed for me unless it is the only treatment for a life threatening illness
I am 2 weeks off it and have periods of awful fatigue and pain but hopeful I will gradually feel better !!