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DiscussionHaving Difficulty Getting Diagnosis
Chronic Pain | Last Active: Jul 11 7:04am | Replies (67)Comment receiving replies
Replies to "I have never heard of central pain amplification? What is it? I had Complex Regional Pain..."
It started with a stiff knee joint Jan. ‘21. Then severe pain in both knees and stomach. Flareups started Jan. 21 but I didn’t know what they were. The nerves are sending wrong messages to the brain. Pain messages. My jaw was moved when I had the jaw pain. My whole body is numb. Facial pain, hands, wrist, feet, legs, shoulders. Pain Specialist diagnosed Central Pain Syndrome or Amplification. Nothing I can do. I’m on medication,!use CBD cream for hands, use Lidocaine patches and cream. Try to walk and do exercises with my pt. Losing my hair quickly. I feel like I’m wasting away. My GP just told me recently to get a second opinion at Mayo in Rochester. We shall see.
Yes, I have bone pain and bone loss in addition to muscle pain. So hard to get people to understand it. What kind of doctor diagnosed your CRPS?
@sommerreign I am curious about the difference between Centralization/Central Pain Amplification and Complex Regional Pain Syndrome. I have watched a video on Centralization and a PT recently explained it to me. I used to wonder if I had CRPS but providers are telling me it's Centralization (which as you know is happening in the brain).
Perhaps Centralization is more temporary?