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DiscussionAnyone have side effects after Lanreotide injection?
Neuroendocrine Tumors (NETs) | Last Active: Nov 2 6:47am | Replies (35)Comment receiving replies
Replies to "I have been on lanreotide injections for the last 15 months. It’s hard to differentiate between..."
Hi all! This is my first post so I probably won't be brief, but I have followed all commentary on NETS Support with great interest! I have been on Somatuline Depot injections since Jan. I just had my 6 mo. scans and it IS working to keep my cancer at bay. However, I pretty much agree with all commentary above, SO many side effects from it, things to monitor, from within a day to 2 weeks of having my injection. Sluggishness is high and energy level is so very low. Ask my husband. Much constipation and terrible painful gas following the injection, many digestive issues which I now attribute more to my injection than my cancer. I recently had a hernia surgery and my preadmission EKG showed bradycardia, low heartrate, which I didn't have before. I also had a very low heartrate event in the hospital. My glucose so far has tested as normal and I also do not have EPI, yet anyway. My next oncology appt. and injection are next week and also many labs are due so we can see more what's going on, or not? I'll keep you posted. Bottom-line, I don't think any one of us are imagining any of these things, many variables for each situation and that is the challenge. (Background on me, I am 73. Last summer was having severe stomachache on my left side that was not going away. Had a cat scan, MRI, PET scan and liver biopsy that ultimately showed secondary liver NETS. I had multiple liver resections and exploratory surgery last Oct. where primary NET was found in my pancreatic tail and distal pancreatectomy was done also. My cancer was diagnosed as primary non-functioning PNET, liver mets / pT1, pN0, pm1a, grade 2, stage IV. My pancreas is now clear, but I still have a sprinkling of stuff in my liver, thus the lanreotide treatment. My oncology surgeon is great and has some pretty good creds and training, but what I have is not very common in my city so I'm not sure my oncologist has treated many people like me.)