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@fdona58

Oh I can definitely relate. When I saw my neurologist ( had diagnosed me with Parkinson's on little else mobility wise , except for my tremor that had already been diagnosed as Essential Tremors over 20 + years ago, in March 2023) on the 19th of December/23 all my neurological, cognitive and physical symptoms that had suddenly started back in October of 2023 had finally come to a head on Dec 14 causing me to be forced to take a medical leave of absence from my work and I was eager to talk to him about what I was experiencing. I thought, since most of the symptoms I was experiencing were cognitive and neurological he was the perfect dr to talk to. When I entered his office, sat down and preceded to pull all my papers that listed everything I was currently experiencing and had been since October/23 in varying degrees out of my folder, he looked at me like I had just grown two more heads. I started to describe my symptoms and got as far as describing what my legs were doing (only the second one on the list) and he stopped me there. He stated that I had restless legs and gave me a prescription for Levodopa CR to take at bed and then just sat there looking at me. I thought that since he was sitting and looking at me he was waiting for me to continue so I did. Boy was I wrong. As soon as I tried to tell him another one of my symptoms ( according to the research and information on all the Parkinson's websites and YouTube videos I had read and watched after he had pronounced that I had Parkinson's and had probably had it for at least 20+ years and then left me hanging with no further information. I had been able to connect most of my symptoms I was experiencing directly to the Parkinson's. There was only 1 problem - most of my symptoms usually didn't appear in Parkinson's until much, much later and the progress of them usually didn't happen as fast as mine did. Other than that fact most of them fitted perfectly with the Parkinson's diagnosis he had given me so of course I figured he was the perfect dr to talk to about them) he immediately interrupted me and said "I am here for your tremor only" And every time I started to describe another symptom, he would instantly interrupt me with "I am here for your tremor only". He shut me down and wouldn't listen to a word I tried to say and when I handed him a paper that listed all the symptoms I had been experiencing since t

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Replies to "Oh I can definitely relate. When I saw my neurologist ( had diagnosed me with Parkinson's..."

Your message got cut off before your finished, but I read a lot of it.

I believe you need a new doctor. It sounds like yours can’t handle complex or serious cases. There are lots and lots of doctors who aren’t very capable or intelligent or whoknowswhat.

I have Parkinson’s in my family and just found out that although others’ cases were mild, because of some of my other health problems it could be worse for me if I have it.

So sorry to hear you couldn’t get the help you need!