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PMR pain and vision

Polymyalgia Rheumatica (PMR) | Last Active: Jul 18 2:25pm | Replies (14)

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@thereselefever

I have experienced blurry vision since the beginning of my PMR. My doctor said I also had GCA, and I did go to see an eye doctor. My blurry vision comes and goes, but the eye doctor could see no reason for it. I don't know if it is something they need to "catch in the moment" or not. It is dramatic when it happens. All at once it is as if lotion has been smeared over my eyes. But it is not painful. It lasts for a few hours and has gone away. Sometimes I have tenderness in the scalp, and sometimes not.
I have been weaning off of prednisone for the past several months. A little over a month ago my doctor put me on Methotrexate to help me during the transition. I know others have not had good luck with this drug, but I think It has really helped. Over the past month I have been able to taper from 6mg to 4 mg with very little pain changes. I notice more stiffness in legs and some pain in hips, but not an increase in neck and shoulder pain.

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Replies to "I have experienced blurry vision since the beginning of my PMR. My doctor said I also..."

I’ve had some trouble with my vision also, just never tied it in with my PMR! I don’t have any other symptoms of GCA, I do know to look for those. One day it felt like I had Vaseline over my eyes! But using dry eye drops and putting a warm compress helped get rid of that. It’s frustrating because I just had a diabetic eye exam and an exam for glasses and now my vision is off and on blurry! I have an appointment with my pcp today and I’m going to ask her about it.

I had a similar feeling of lotion or Vaseline smeared over my eyes that lasted a few hours and went away—it was very scary at the time!
As I mentioned in another post here, did not really get an answer to this, I don’t think it’s my blood sugar like my PCP said—blood drawn the day I saw her showed I was in a PMR flare!! I also have very early cataracts according to the ophthalmologist, that so far I don’t need surgery for yet. My rheumatologist does not want to increase my prednisone (on 7.5 mg) because I’m on treatment for my osteoporosis (Reclast)! My one hope is the Actemra that he wants me to take. It is either an injection or infusion and hopefully will have no nasty side effects.