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@bobweller

I started experiencing pheriferial neuropathy in 2018 after my second liver transplant in 2017. I went to see a Neurologist at my transplant center hospital. After about 15 different blood test and a test on my feet with electrical stimulation to measure my feet's nerve reactions. I talked to this doctor about medicine for this pain like Lyrica at that time. So I started taking it daily. A couple years ago this doctor left my hospital so I found another one. He seems better at what he does. But still taking Lyrica (now it's generic pregabalin), 100mg twice daily. Plus I went to see a doctor about pain they suggested THC which is in marijuana. My state has medical marijuana so I got a card and started using it latee in the evenings. This seems to have help with taking Pregabalin. However, you need to control your use of anything you take into your body. Even certain vitamins, minerals and supplements when taken at high levels can cause toxicity to your body. And because of bring a transplant patient, I still have to take immune surpressants (Prograf/Tacrolimus genetic) that my first Neurologist said could have caused my neuropathy but I my Transplant Doctor did reduce my immune surpressants daily. My second Neurologist doctor and his PA did perform further tests. One being a vitamin level test for B6 and told me to reduce my B supplements I take. I had started a B Complex vitamin a few years back with all B vitamins, espically B12 which if your body has low levels this cause pian and I take alpha lipoic acid supplement that was suggested. I also tried meditation too.

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Replies to "I started experiencing pheriferial neuropathy in 2018 after my second liver transplant in 2017. I went..."

I totally agree with everything you say. Supplements scare me as much as prescription drugs. The interactions they have can be harmful. Just because they’re OTC doesn’t mean they are safe with other things. My doctor wants me to stick with gabapentin as long as I can since he considers pregabalin the last line of defense. I am going for blood work next week and hoping results will show an easier fix than another prescription is an option…maybe just a nice B12 deficiency🤷‍♀️