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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: Oct 3 7:57am | Replies (491)
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@annatee

Hi! I’m from australia too, with sfn symptoms and autonomic symptoms like dry mouth since a vaccine 5 weeks ago. not sure if there’s a way to message me or not, but i’d really love to learn who diagnosed your sfn and how did they determine you had it - was the lumbar puncture the final decider ? i know there’s a type of antibody they can test for as well. no idea what’s available in this country!

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Replies to "Hi! I’m from australia too, with sfn symptoms and autonomic symptoms like dry mouth since a..."
artemis1886 | @artemis1886 | Jul 11 2:48am

SFN is diagnosed with a biopsy in three locations on your leg. Sometimes they only do two biopsies.

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trudi22 | @trudi22 | Jul 11 4:33pm

I was diagnosed with sfn in 2020 by skin punch biopsy. My neurologist said that was his immediate tell sign for my sfn because mine was not good. I was actually relieved to get some diagnosis after being in terrible pain for so long. My insurance will not cover IVIG for SFN deeming it as exploratory. So far mine is idiopathic, but still searching for the cause. I do not have diabetes. I have an autoimmune disease, but they do not know what it is. I've tested positive for scleroderma but "don't show enough signs" for that. I do show signs of lupus and other diseases. It is very painful and some days are debilitating. I sure hope you get all the good doctors and help you need.

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