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@hopeful33250

I appreciate you sharing your journey with NETs, @janmar1960. Could you share about the type of treatments you have had (surgery, monthly injections, etc.)?

How long ago were your NETs diagnosed and are you having good symptom control, now?

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Replies to "I appreciate you sharing your journey with NETs, @janmar1960. Could you share about the type of..."

Lanreotide monthly since dec 2023. NET currently stable after scan in May . Diagnosed in Oct 2023 with stage 4 grade 1 small bowel with mesentery spread and possible liver involvement. Feeling ok on lanreotide and symptoms are quite manageable at the moment no surgery is anticipated , I live in the Uk so do not have insurance issues to consider luckilyas the have a national health service that said I am currently using my private health insurance though the treatment would be the same if I switch over to NHS