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@janmar1960

I thought I replied but if I didn’t here goes . I presented at stage 4 with symptoms of needing to go to loo straight after breakfast and it being more diahrria. Perfectly fit with a bit of flushing occasionally. Was really shocked as j was perfectly fit and healthy. However it I as more important with NET cancer to know the grade not the stage . The grade determines the rate I which it grows it’s a ki67 percentage 0. To 100. 100 being the fasted rate. And it is importsnt to know if it is well or poor differentiated as this determines if the cells are behaving more like normal cells . Finally do not despair until you have the facts as you can live for decades with low grade well differentiated nets even if stage 4.

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Replies to "I thought I replied but if I didn’t here goes . I presented at stage 4..."

Thank you

I appreciate you sharing your journey with NETs, @janmar1960. Could you share about the type of treatments you have had (surgery, monthly injections, etc.)?

How long ago were your NETs diagnosed and are you having good symptom control, now?