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Feelings when tapering: My journey

Polymyalgia Rheumatica (PMR) | Last Active: 2 days ago | Replies (57)

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@joan7

I was originally on 60mg of Prednisone for possible Giant Cell Arteritis. I found when I was weaning from 10 mg to 7.5 mg was when my pain started to return. However, I also found that the pain was due to the Prednisone withdrawal and NOT THE PMR. This was my weaning experience from 10 mg down to where I am now:

10 mg to 7.5 mg - a lot of pain - had to take 2 Advil - pain went away and never returned (speak to your doctor before taking Advil, may recommend Tylenol instead)
7.5 mg to 5 mg - severe pain - again took 2 Advil - same as above
5 mg to 4 mg - intermittent pain but eventually went away.
4 mg to 3 mg - Intermittent pain and some fatigue that did not go away
3 mg to 3 mg every other day and 2 in between - working out very well. Hardly notice any issues.

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Replies to "I was originally on 60mg of Prednisone for possible Giant Cell Arteritis. I found when I..."

What was the time frame for all of this tapering. I took prednisone for 12 years for PMR. When I was finally able to discontinue prednisone, I had to stay on 3 mg for 6 months because my cortisol level was low. An endocrinologist said it "might be safe" to discontinue prednisone after my cortisol level improved.