I was diagnosed in 2023, this was all found on accident as I was involved in a car accident and when I had an MRI they found a tumor on my tail bone. I had a boner biopsy and was confirmed cancer. after the gallium scan is when they found everything. I had no symptoms the only one was pain in my intestine and that is where the primary tumor is. I have stage 4 grad1 . the only treatments I had are my monthly Lanreotide. Starting back in February is when i was prescribed octreotide. Been at this for a year and half now. I have my ups and downs otherwise I feel ok